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publications: EAPC Reference Group Public Health & Palliative Care

I. Articles in peer-reviewed international journals indexed in SCI or SocSCI

 

  1. Breen L, Johnson A, Howting D, Aoun S (2020). Challenges in Palliative Care Research on Family Caregivers: Who Volunteers for Interviews? J Palliative Medicine. DOI: 10.1089/jpm.2019.0672 [2019 SCI impact factor 2.238; journal ranking Q2; ranking n° 48 of 102 in HEALTH CARE SCIENCES & SERVICES]
  2. Aoun SM, Cafarella PO, Rumbold B, Hogden A, Thomas G, Jiang L, Gregory S, Kissane D (2020). Who cares for the bereaved? A national survey of family caregivers of people with Motor Neurone Disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, DOI: 10.1080/21678422020.1813780 [2019 SCI impact factor 3.286; journal ranking Q2; ranking n° 68 of 204 in CLINICAL NEUROLOGY]
  3. Mallon A, Slater P, Hasson F, Casson K., McIlfatrick S. What do young adults know about palliative care? A cross-sectional survey. Public Health 2021, 191, pp.78-84. https://doi.org/10.1016/j.puhe.2020.1023 [2019 SCI impact factor 774; journal ranking Q2; ranking n° 77 of 171 in PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH in SSCI edition
  4. McIlfatrick S, Slater P, Beck E, Bamidele O, McCloskey S, Carr K, Muldrew D, Hanna-Trainor L, Hasson F. Examining public knowledge, attitudes and perceptions towards palliative care: a mixed method sequential study. BMC palliative care 2021, 20(1), pp.1-11. https://doi.org/10.1186/s12904-021-00730-5 [2019 SCI impact factor 015; journal ranking Q2; ranking n° 39 of 87 in HEALTH POLICY & SERVICES]
  5. Gill F, Hashem Z, Stegmann R, Aoun SM (2021). The support needs of parent carers of children with a life limiting illness and approaches used to meet their needs: a scoping review. Palliative Medicine Vol. 35(1) 76–96. DOI: 10.1177/0269216320967593 journals.sagepub.com/home/pmj [2019 SCI impact factor 739; journal ranking Q1; ranking n°15/102 in Health Sciences & Services]
  6. Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K. Volunteers in palliative care: A healthcare system-wide cross-sectional survey [published online ahead of print, 2020 Aug 21]. BMJ Support Palliat Care. 2020;bmjspcare-2020-00232 doi:10.1136/bmjspcare-2020-002321 [2019 SCI impact factor  2.681 ;  Ranking Q2; ranking  34 of 102 in  HEALTH CARE SCIENCES & SERVICES ]
  7. Rumbold, B., Lowe, J., & Aoun, S. M. (2020). The Evolving Landscape: Funerals, Cemeteries, Memorialization, and Bereavement Support. OMEGA - Journal of Death and Dying. https://doi.org/10.1177/0030222820904877 [2018 SCI impact factor 1.127; Ranking Q3; 86 of 137 in PSYCHOLOGY, MULTIDISCIPLINARY]
  8. Lowe, J., Rumbold, B., & Aoun, S. M. (2019). Memorialization Practices Are Changing: An Industry Perspective on Improving Service Outcomes for the Bereaved. OMEGA - Journal of Death and Dying. https://doi.org/10.1177/0030222819873769  [2018 SCI impact factor 1.127; Ranking Q3; 86 of 137 in PSYCHOLOGY, MULTIDISCIPLINARY]
  9. Vanderstichelen, S, Cohen, J, Van Wesemael, Y, Deliens, L, Chambaere, K. The involvement of volunteers in palliative care and their collaboration with healthcare professionals: A cross‐sectional volunteer survey across the Flemish healthcare system (Belgium). Health Soc Care Community. 2019; 00: 1– 15. https://doi.org/10.1111/hsc.12905 [Epub ahead of print] [2018 SCI impact factor 1.573 ; Ranking Q1; ranking 8/43 in Social Work]
  10. Maetens A, Deliens L, De Bleecker J, Caraceni A, De Ridder M, Beernaert K, Cohen J. Healthcare utilization at the end of life in people dying from amyotrophic lateral sclerosis: A retrospective cohort study using linked administrative data. J Neurol Sci. 2019 Aug 31;406:116444. doi: 10.1016/j.jns.2019.116444. [Epub ahead of print] PubMed PMID: 31520967. [2018 SCI impact factor  2.651;   Ranking Q2; ranking n° 99 of 199 in  CLINICAL NEUROLOGY]
  11. Dierickx S, Onwuteaka-Philipsen B, Penders Y, Cohen J, van der Heide A, Puhan MA, Ziegler S, Bosshard G, Deliens L, Chambaere K. Commonalities and differences in legal euthanasia and physician-assisted suicide in three countries: a population-level comparison. Int J Public Health. 2019 Jul 11. doi: 10.1007/s00038-019-01281- [Epub ahead of print] PubMed PMID: 31297558. [2018 SCI impact factor  2.373 ;   Ranking Q2; ranking n 69 of 185 in  PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH in SCIE edition]
  12. Vermorgen M, De Vleminck A, Leemans K, Van den Block L, Van Audenhove C, Deliens L, Cohen J. Family carer support in home and hospital: a cross-sectional survey of specialised palliative care. BMJ Support Palliat Care. 2019 Jun 26. pii: bmjspcare-2019-001795. doi: 10.1136/bmjspcare-2019-001795. [Epub ahead of print] PubMed PMID: 31243021. [2018 SCI impact factor  3.208;  Ranking Q1; ranking n°  21 of 98 in  HEALTH CARE SCIENCES & SERVICES]
  13. Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K. Perspectives on Volunteer-Professional Collaboration in Palliative Care: A Qualitative Study Among Volunteers, Patients, Family Carers, and Health Care Professionals. J Pain Symptom Manage. 2019 Aug;58(2):198-207.e7. doi:10.1016/j.jpainsymman.2019.04.016. Epub 2019 Apr 25. PubMed PMID: 31028875. [2017 SCI impact factor 3.249;  ranking Q1; ranking n° 29/155 in MEDICINE, GENERAL & INTERNAL]
  14. Maetens A, Deliens L, Van den Block L, Beernaert K, Cohen J. Are We Evolving Toward Greater and Earlier Use of Palliative Home Care Support? A Trend Analysis Using Population-Level Data From 2010 to 2015. J Pain Symptom Manage. 2019 Jul;58(1):19-28.e10. doi: 10.1016/j.jpainsymman.20104.008. Epub 2019 Apr 18. PubMed PMID: 31004775. [2017 SCI impact factor 3.249;  ranking Q1; ranking n° 29/155 in MEDICINE, GENERAL & INTERNAL]
  15. Aoun SM, Breen LJ, Rumbold B, Christian KM, Same A, Abel J. Matching response to need: What makes social networks fit for providing bereavement support? PLoS One. 2019 Mar 7;14(3):e0213367. doi: 10.1371/journal.pone.0213367. eCollection 2019. PubMed PMID: 30845193. [2017 SCI impact factor  2.766 ;   Ranking Q1; ranking n°  15 of 64 in MULTIDISCIPLINARY SCIENCES]
  16. Maetens A, Beernaert K, Deliens L, Gielen B, Cohen J (2018) Who finds the road to palliative home care support? A nationwide analysis on the use of supportive measures for palliative home care using linked administrative databases. PLOS ONE 14(3): e0213731. https://doi.org/10.1371/journal.pone.0213731 [2017/18 SCI impact factor 2.766;  ranking Q1; ranking n°11 of 62 in  MULTIDISCIPLINARY SCIENCES].
  17. Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K. The liminal space palliative care volunteers occupy and their roles within it: a qualitative study. BMJ Support Palliat Care. 2018 Dec 7. pii:bmjspcare-2018-001632. doi: 10.1136/bmjspcare-2018-001632. [Epub ahead of print] PubMed PMID: 30530629. [2017 SCI impact factor 2.385;   Ranking Q2; ranking n° 35 of 94 in HEALTH CARE SCIENCES & SERVICES]
  18. Maetens A, Beernaert K, De Schreye R, Faes K, Annemans L, Pardon K, Deliens L, Cohen J. Impact of palliative home care support on the quality and costs of care at the end of life: a population-level matched cohort study. BMJ Open. 2019 Jan 21;9(1):e025180. doi: 10.1136/bmjopen-2018-025180. PubMed PMID: 30670524. [2017 SCI impact factor  2.413;   Ranking Q2; ranking n° 43 of 155 in MEDICINE, GENERAL & INTERNAL]
  19. Vanderstichelen S, Cohen J, Van Wesemael Y, Deliens L, Chambaere K. Volunteer involvement in the organisation of palliative care: A survey study of the healthcare system in Flanders and Dutch-speaking Brussels, Belgium. Health Soc Care Community. 2019 Mar;27(2):459-471. doi: 10.1111/hsc.12666. Epub 2018 Oct 16. PubMed PMID: 30325557.[2017 SCI impact factor 2.782; ranking Q1; ranking 7/42 in SOCIAL WORK]
  20. Dierickx S, Cohen J, Vander Stichele R, Deliens L, Chambaere K. Drugs used for euthanasia: a repeated population-based mortality follow-back study in Flanders, Belgium, 1998 - 2013. J Pain Symptom Manage. 2018 Jul 12. pii: S0885-3924(18)30339-7. doi: 10.1016/j.jpainsymman.2018.06.0 [Epub ahead of print] PubMed PMID: 30009965. [2017 SCI impact factor  3.249;   ranking Q1; ranking n° 29/154 in  in MEDICINE, GENERAL & INTERNAL]
  21. De Schreye R, Smets T, Deliens L, Annemans L, Gielen B, Cohen J. Appropriateness of end-of-life care in people dying from COPD. Applying quality indicators on linked administrative databases. J Pain Symptom Manage. 2018 Jun 27. pii: S0885-3924(18)30334-8. doi: 10.1016/j.jpainsymman.2018.06.011. [Epub ahead of print] PubMed PMID: 29960021. [2017 SCI impact factor 3.249;  ranking Q1; ranking n° 29/154 in MEDICINE, GENERAL & INTERNAL]
  22. Faes K, Cohen J, Annemans L. Resource use during the last 6 months of life among COPD patients: a population level study. J Pain Symptom Manage. 2018 Jun 11. pii: S0885-3924(18)30295-1. doi: 10.1016/j.jpainsymman.2018.06.002. [Epub ahead of print] PubMed PMID: 29902554. [2016 SCI impact factor 2.905; ranking Q1; ranking n° 31/155 in medicine, general & internal]
  23. Aoun SM, Breen LJ, White I, Rumbold B, Kellehear A. What sources of bereavement support are perceived helpful by bereaved people and why? Empirical evidence for the compassionate communities approach. Palliat Med. 2018 May 1:269216318774995. doi: 10.1177/0269216318774995. [Epub ahead of print] PubMed PMID: 29754514. [2016 SCI impact factor 4.22; ranking Q1; ranking n° 18/176 in public, environmental & occupational health]
  24. Vanderstichelen S, Houttekier D, Cohen J, Van Wesemael Y, Deliens L, Chambaere K. Palliative care volunteerism across the healthcare system: A survey study. Palliat Med. 2018 May 1:269216318772263. doi: 10.1177/0269216318772263. [Epub ahead of print] PubMed PMID: 29737245. [2016 SCI impact factor 4.22; ranking Q1; ranking n° 18/176 in public, environmental & occupational health]
  25. Harding R, Marchetti S, Onwuteaka-Philipsen BD, Wilson DM, Ruiz-Ramos M, Cardenas-Turanzas M, Rhee Y, Morin L, Hunt K, Teno J, Hakanson C, Houttekier D, Deliens L, Cohen J. Place of death for people with HIV: a population-level comparison of eleven countries across three continents using death certificate data. BMC Infect Dis. 2018 Jan 25;18(1):55. doi: 10.1186/s12879-018-2951-x. PubMed PMID: 29370765. [2016 SCI impact factor 2.768; ranking n° 37/84 in infectious diseases; journal  ranking Q2]
  26. Faes K, Cohen J, Annemans L. Resource Use During the Last 6 Months of Life of Individuals Dying with and of Alzheimer's Disease. J Am Geriatr Soc. 2018 Feb 15. doi: 10.1111/jgs.15287. [Epub ahead of print] PubMed PMID: 29446066. [2016 SCI impact factor 4.388 ; ranking n° 2/32 in gerontology; journal  ranking D1]
  27. Cohen J, Dierickx S, Penders YWH, Deliens L, Chambaere K. How accurately is euthanasia reported on death certificates in a country with legal euthanasia: a population-based study. Eur J Epidemiol. 2018 Apr 21. doi: 10.1007/s10654-018-0397-5. [Epub] PubMed PMID: 29680997. [2016 SCI impact factor 7.226; journal  ranking D1; ranking n°6/176 in Public, Environmental & Occupational Health].
  28. Scherrens AL, Beernaert K, Robijn L, Deliens L, Pauwels NS, Cohen J, Deforche B. The use of behavioural theories in end-of-life care research: A systematic review. Palliat Med. 2018 Mar 1:269216318758212. doi: 10.1177/0269216318758212. [Epub ahead of print] PubMed PMID: 29569998. [2016 SCI impact factor 4.22; ranking Q1; ranking n° 18/176 in public, environmental & occupational health]
  29. Aoun SM, Rumbold B, Howting D, Bolleter A, Breen LJ. Bereavement support for family caregivers: The gap between guidelines and practice in palliative care. PLoS One. 2017 Oct 4;12(10):e0184750. doi: 10.1371/journal.pone.0184750. eCollection 2017. PubMed PMID: 28977013; PubMed Central PMCID: PMC5627900. [2016 SCI impact factor 2.806; ranking Q1; ranking n° 15/64 in multidisciplinary sciences]
  30. Aoun SM, Breen LJ, Howting DA, Rumbold B, McNamara B, Hegney D. Who needs bereavement support? A population based survey of bereavement risk and support need. PLoS One. 2015 Mar 26;10(3):e0121101. doi: 10.1371/journal.pone.0121101. eCollection 2015. PubMed PMID: 25811912; PubMed Central PMCID: PMC4374848. [2016 SCI impact factor 2.806; ranking Q1; ranking n° 15/64 in multidisciplinary sciences]
  31. Aoun SM, Breen LJ, O'Connor M, Rumbold B, Nordstrom C. A public health approach to bereavement support services in palliative care. Aust N Z J Public Health. 2012 Feb;36(1):14-6. doi: 10.1111/j.1753-6405.2012.00825.x. PubMed PMID:  22313700. [2016 SCI impact factor 1.69; ranking Q2; ranking n° 72/157 in public, environmental & occupational health]

 

II Other articles in peer-reviewed international journals

  1. Aoun SM, Abel J, Rumbold B, Cross K, Moore J, Skeers P, Deliens L (2020). The Compassionate Communities Connectors model for end of life care: a community and health service partnership in Western Australia. Palliative Care and Social Practice. Vol. 14: 1–9 DOI: 10.1177/2632352420935130
  2. Aoun SM, Keegan O, Roberts A, Breen L (2020). The impact of bereavement support on wellbeing: A comparative study between Australia and Ireland. Palliative Care and Social Practice. Vol. 14: 1–14 DOI: 10.1177/ 2632352420935132
  3.  Lowe J, Rumbold B, Aoun SM (2020). Memorialisation and Grief During COVID-19: Challenges for Communities and Service Providers. Palliative Care and Social Practice. DOI: 10.1177/ 2632352420980456
  4.  Aoun SM, Gill F, Phillips M, Momber S, Cuddeford L, Deleuil R, Stegmann R, Howting D, Lyon M (2020). The profile and support needs of parents in paediatric palliative care: Comparing cancer and non-cancer groups. Palliative Care and Social Practice. 2020, Vol. 14: 1–14 DOI: 10.1177/2632352420958000.
  5. Masa, Martinez-Bredeck, Butler, Anderson, Girgis, Aoun, Cunningham, Wakefield, Shahid, Smith, Garvey (2020). The experiences of caregivers of Indigenous cancer survivors in Australia, Canada, New Zealand and the United States: a systematic review. Journal of Psychosocial Oncology Research & Practice, 2.4. doi.org/10.1097/OR9.0000000000000040
  6.  Jason Mills , John P. Rosenberg , Georg Bollig & John Haberecht (2020): Last Aid and Public Health Palliative Care: Towards the development of personal skills and strengthened community action, Progress in Palliative Care, DOI: 10.1080/09699260.2020.1829798
  7. Abel J, Kellehear A, Millington Sanders C, Taubert M, Kingston H. Advance care planning re-imagines: a needed shift for COVID times and beyond. Palliative Care & Social Practice 2020, 14. Doi: 10.1177/2632352420934491
  8. Kellehear A. Civic Partnerships in Palliative Care: Making the public health case. Omsorg 2019, 4. https://reader.dbok.no/#/book/5dee0813e0811f00127d047e/1
  9. Allan Kellehear (2020) Compassionate Cities: global significance and meaning for palliative care, Progress in Palliative Care, 28:2, 115-119, DOI: 10.1080/09699260.2019.1701835
  10. Aoun, S. M., Abel, J., Rumbold, B., Cross, K., Moore, J., Skeers, P., & Deliens, L. (2020). The Compassionate Communities Connectors model for end-of-life care: a community and health service partnership in Western Australia. Palliative Care and Social Practice. https://doi.org/10.1177/2632352420935130
  11. Bruce Rumbold, Jennifer Lowe & Samar M Aoun (2019) Funerals, memorials and bereavement care, Bereavement Care, 38:2-3, 62-67, DOI: 10.1080/02682621.2019.1681637
  12. Samar M. Aoun (2020): Bereavement support: From the poor cousin of palliative care to a core asset of compassionate communities, Progress in Palliative Care, DOI: 10.1080/09699260.2019.1706277
  13. Hilbers J, Rankin-Smith H, Horsfall D, Aoun S (2018). “We are all in this together”: Building capacity for a community-centred approach to caring, dying and grieving in Australia. European Journal for Person Centered Healthcare Vol 6 Issue 4 pp 685-692.
  14. Abel J, Kellehear A, Karapliagou A. Palliative care-the new essentials. Ann Palliat Med. 2018 Apr;7(Suppl 2):S3-S14. doi: 10.21037/apm.20103.04. PubMed PMID: 29764169.
  15. Archibald D, Patterson R, Haraldsdottir E, et al Mapping the progress and impacts of public health approaches to palliative care: a scoping review protocol BMJ Open 2016;6:e012058. doi: 10.1136/bmjopen-2016-012058
  16. Sallnow L, Tishelman C, Lindqvist O, Richardson H, Cohen J. Research in public health and end-of-life care – Building on the past and developing the new. Progress in Palliative Care, 2016, 24(1):25-30.
  17. Bruce Rumbold MSc PhD BD(Hons) PhD MA & Samar Aoun BSc(Hons) MPH PhD (2016) An assets-based approach to bereavement care, Bereavement Care, 34:3, 99-102, DOI: 10.1080/02682621.2015.1115185
  18. Rumbold, Bruce & Aoun, Samar. (2014). Bereavement and palliative care: A public health perspective. Progress in Palliative Care. 22. 131-135. 10.1179/1743291X13Y.0000000079.

III. Books and chapters in books

  1. Pivodic L., Cohen J. (2019) Public Health and Epidemiological Research in Palliative Care. In: MacLeod R., Van den Block L. (eds) Textbook of Palliative Care. Springer, Cham
  2. Sallnow L., Paul S. (2019) New Public Health Approaches to End-of-Life Care. In: MacLeod R., Van den Block L. (eds) Textbook of Palliative Care. Springer, Cham
  3. Maetens A., Cohen J., Harding R. (2019) A Public Health Approach to Integrate Palliative Care into a Country’s Health-Care System: Guidance as Provided by the WHO. In: MacLeod R., Van den Block L. (eds) Textbook of Palliative Care. Springer, Cham
  4. Gómez-Batiste, Xavier & Connor, Stephen. (2007). Building Integrated Palliative Care Programs and Services. Printed by liberdúplex, Catalonia.  ISBN: 978-84-9766-602-2.

IV. Other professional reports

  1. Briefing Paper: Public Health Approaches to Palliative Care November 2017. Paper prepared by Brendan O’Hara, Programme Manager, All Ireland Institute of Hospice and Palliative Care (AIIHPC), Education and Research Centre, Our Lady’s Hospice & Care, Services, Harold’s Cross, Dublin