Public Health Research in Palliative Care: Shifting the Paradigm

Thursday 25 October

9u00

Coffee

9u25

Welcome by prof. Augusto Caraceni, Chair of European Association for Palliative Care - Research Network
and prof. Luc Deliens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 

9u50

Invited lecture: Epidemiology & palliative care
prof. Agnes van der  Heide, Erasmus MC, The Netherlands

10u20

Invited lecture: What can big data do for public health palliative care research?
prof. Joachim Cohen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium

10u50

Lecture based on best abstract selection:
Men and Family caregivers’ experiences of advanced prostate cancer in Ghana: A qualitative serial interview study
Yakubu Salifu, University of Nottingham, United Kingdom

11u10

Abstract session: Epidemiology and population health
Chairs: prof. Joachim Cohen and prof. Agnes van der Heide

• 11u10: Trends in the timing and uptake of palliative home care support: a register-based study using full-population national databases from 2010-2015 – Arno Maetens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
• 11u30: Dying in long-term care facilities in Europe: the PACE epidemiological study of deceased residents in six countries. – Elisabeth Honinx,  End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
• 11u50: Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population based study between 2008 and 2016. – dr. Heidi Fransen, Netherlands Comprehensive Cancer Organisation (IKNL), The Netherlands
• 12u10: The quality of primary palliative care for the oldest-old in three European countries: A mortality follow-back study – Kim de Nooijer, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
• 12u30: Experience of bereavement and grief support: An Irish population study – Amanda Roberts, Irish Hospice Foundation, Ireland     

12u50

Lunch & poster viewing

14u00

Abstract session: New public health approaches and community development
Chairs: prof. Xavier Gomez Batiste Alentorn and prof. Gunn Grande

• 14u00: Findings from a DöBra Feasibility Study: A Conversation-based Intervention for Clarifying Values and Preferences for End-of-Life in the Advance Care Planning-naïve Swedish Context - Malin Henriksson, Karolinska Institutet, Sweden
• 14u20: Navigating power and responsibility in developing an intergenerational and arts-based program about death and loss as part of the Swedish DöBra
  Max Kleijberg, Karolinska Institutet, Sweden
• 14u40: Exploring a conversation tool for reflection about the end of life in elder care Therese Johansson, Karolinska Institutet, Sweden
• 15u00: Where lies the potential role of public health in shaping equity of access of palliative care services for homeless individuals?- Karyn Joss, University of Edinburgh, United Kingdom
• 15u20: Making The People’s Charter on Dying, Death and Bereavement in Ireland – Rebecca Lloyd, Irish Hospice Foundation, Ireland

15u40

Coffee

16u00

Invited lecture: Why public health should look at family carers of dying persons 
prof. Gunn Grande, Supportive and Palliative Care Research Group, University of Manchester, UK 

16u30-17u30

Panel discussion day 1: panel members (TBD)

17u30-18u30

Poster viewing

18u30-
20u30

Conference dinner (walking dinner)

Friday 26 October

9u00

Coffee

9u30

Invited lecture: Natural history of palliative care: From the British hospices to the Compassionate communities
prof. Xavier Gomez Batiste Alentorn, Catalan Institute of Oncology, Spain

10u00

Lecture based on best abstract selection:
Criterion validation of a simple tool for early identification of palliative care patients (ID-PALL): preliminary results
Fabienne Teike Lüthi,. University of Lausanne, Switzerland   

10u20

Invited lecture: What's new about new public health research? What role does it play in the future of palliative care research?
dr. Libby Sallnow, University College London and St Christopher's Hospice, UK

10u50

Coffee

11u10

Abstract session: Health services, health care and policy
Chairs: prof. Luc Deliens and dr. Libby Sallnow

• 11u10: Four profiles of informal caregivers who provide care to patients at home at the end of life: A Q-methodological study into informal caregiver’ support needs -  Dr. Roeline Pasman, Universiteit Amsterdam, The Netherlands
• 11u30: Self-management of patients with advanced cancer: a systematic review – Kim de Nooijer, Erasmus University Medical Center, Rotterdam, The Netherlands  & End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
• 11u50: Stakeholder engagement in the development of complex interventions – Joni Gilissen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
• 12u10: Support for family carers in specialized palliative care: a cross-sectional survey study in 34 palliative care services at home and in the hospital – Maarten Vermorgen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
• 12u30: Post-graduate palliative care education for all healthcare providers in Europe: Results from an EAPC survey – Piret Paal, Paracelsus Medical Private University (PMU), Austria

12u50

Paneldiscussion day 2: panel members (TBD)

13u30

Closing of congress followed by lunch, 
prof. Luc Deliens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium