Public Health Research in Palliative Care: Shifting the Paradigm

When:

25-10-2018 to 26-10-2018

Where:

Brussels, Belgium

International Seminar of EAPC RN and the EAPC Reference Group on Public Health and Palliative Care

Many thanks for joining us at the first international seminar on Public Health Research in Palliative Care in Brussels, organized by the EAPC RN and EAPC Reference Group on Public Health and Palliative Care. It was a pleasure to see and hear about all the interesting research focused on public health. We hope you found the ideas and discussions stimulating as well.

For a brief review of the seminar, we refer to this interesting article by participant Piret Paal from PMU Salzburg.

Registration is closed

Registration fee: €250
Registration fee for Bachelor/ Master students: €80

Bank account number and swift/bic code:

BE51 0010 6864 5562
GEBABEBB
Please don’t forget to add the following reference:
CONI635 HUISINK50_Name Participant

Abstract Submission is closed

Themes

Improving support in society for palliative care
Death, dying and loss
Family caregiving for people with serious illness
Volunteers in end-of-life and palliative care
Non-professional agents and organizations in end-of-life and palliative care
Collaboration and coalitions between health care services and civil society or the general public
Community interventions to improve end-oflife or bereavement care
Public health policy to improve end-of-life or bereavement care in society

Target Groups

Academics and researchers
Patient organizations
Informal carer organizations
Volunteer organizations
Policy makers
Palliative care professionals
Palliative care organizations

Programme Day 1

Thursday 25 October
9u00	Coffee
9u25	Welcome by prof. Augusto Caraceni, Chair of European Association for Palliative Care - Research Network and prof. Luc Deliens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
9u50	Invited lecture: Epidemiology & palliative care prof. Agnes van der Heide, Erasmus MC, The Netherlands
10u20	Invited lecture: What can big data do for public health palliative care research? prof. Joachim Cohen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
10u50	Lecture based on best abstract selection: Men and Family caregivers’ experiences of advanced prostate cancer in Ghana: A qualitative serial interview study Yakubu Salifu, University of Nottingham, United Kingdom
11u10	Abstract session: Epidemiology and population health Chairs: prof. Joachim Cohen and prof. Agnes van der Heide 11u10: Trends in the timing and uptake of palliative home care support: a register-based study using full-population national databases from 2010-2015 – Arno Maetens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 11u30: Dying in long-term care facilities in Europe: the PACE epidemiological study of deceased residents in six countries. – Elisabeth Honinx, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 11u50: Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population based study between 2008 and 2016. – dr. Heidi Fransen, Netherlands Comprehensive Cancer Organisation (IKNL), The Netherlands 12u10: The quality of primary palliative care for the oldest-old in three European countries: A mortality follow-back study – Kim de Nooijer, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 12u30: Experience of bereavement and grief support: An Irish population study – Amanda Roberts, Irish Hospice Foundation, Ireland
12u50	Lunch & poster viewing
14u00	Abstract session: New public health approaches and community development Chairs: prof. Xavier Gomez Batiste Alentorn and prof. Gunn Grande 14u00: Findings from a DöBra Feasibility Study: A Conversation-based Intervention for Clarifying Values and Preferences for End-of-Life in the Advance Care Planning-naïve Swedish Context - Malin Henriksson, Karolinska Institutet, Sweden 14u20: Navigating power and responsibility in developing an intergenerational and arts-based program about death and loss as part of the Swedish DöBra Max Kleijberg, Karolinska Institutet, Sweden 14u40: Exploring a conversation tool for reflection about the end of life in elder care Therese Johansson, Karolinska Institutet, Sweden 15u00: Where lies the potential role of public health in shaping equity of access of palliative care services for homeless individuals?- Karyn Joss, University of Edinburgh, United Kingdom 15u20: Making The People’s Charter on Dying, Death and Bereavement in Ireland – Rebecca Lloyd, Irish Hospice Foundation, Ireland
15u40	Coffee
16u00	Invited lecture: Why public health should look at family carers of dying persons prof. Gunn Grande, Supportive and Palliative Care Research Group, University of Manchester, UK
16u30-17u30	Panel discussion day 1: panel members (TBD)
17u30-18u30	Poster viewing
18u30- 20u30	Conference dinner (walking dinner)

Programme Day 2

Friday 26 October
9u00	Coffee
9u20	Opening by Maggie De Block, Minister of Social Affairs and Health, Belgium
9u30	Invited lecture: Natural history of palliative care: From the British hospices to the Compassionate communities prof. Xavier Gomez Batiste Alentorn, Catalan Institute of Oncology, Spain
10u00	Lecture based on best abstract selection: Criterion validation of a simple tool for early identification of palliative care patients (ID-PALL): preliminary results Fabienne Teike Lüthi,. University of Lausanne, Switzerland
10u20	Invited lecture: What's new about new public health research? What role does it play in the future of palliative care research? dr. Libby Sallnow, University College London and St Christopher's Hospice, UK
10u50	Coffee
11u10	Abstract session: Health services, health care and policy Chairs: prof. Luc Deliens and dr. Libby Sallnow 11u10: Four profiles of informal caregivers who provide care to patients at home at the end of life: A Q-methodological study into informal caregiver’ support needs - Dr. Roeline Pasman, Universiteit Amsterdam, The Netherlands 11u30: Self-management of patients with advanced cancer: a systematic review – Kim de Nooijer, Erasmus University Medical Center, Rotterdam, The Netherlands & End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 11u50: Stakeholder engagement in the development of complex interventions – Joni Gilissen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 12u10: Support for family carers in specialized palliative care: a cross-sectional survey study in 34 palliative care services at home and in the hospital – Maarten Vermorgen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 12u30: Post-graduate palliative care education for all healthcare providers in Europe: Results from an EAPC survey – Piret Paal, Paracelsus Medical Private University (PMU), Austria
12u50	Paneldiscussion day 2: panel members (TBD)
13u30	Closing of congress followed by lunch, prof. Luc Deliens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium