Public Health Research in Palliative Care: Shifting the Paradigm

25-10-2018 to 26-10-2018
Brussels, Belgium

International Seminar of EAPC RN and the EAPC Reference Group on Public Health and Palliative Care

Many thanks for joining us at the first international seminar on Public Health Research in Palliative Care in Brussels, organized by the EAPC RN and EAPC Reference Group on Public Health and Palliative Care. It was a pleasure to see and hear about all the interesting research focused on public health. We hope you found the ideas and discussions stimulating as well.

For a brief review of the seminar, we refer to this interesting article by participant Piret Paal from PMU Salzburg.

Below, you can find the abstract book with an with an overview of all abstracts that received a poster or oral presentation during the seminar, the photo gallery and we are planning to put the presentations online as well. 


Registration is closed

Registration fee: €250
Registration fee for Bachelor/ Master students: €80

Bank account number and swift/bic code:

BE51 0010 6864 5562
Please don’t forget to add the following reference:
CONI635 HUISINK50_Name Participant

Abstract Submission is closed


  • Improving support in society for palliative care
  • Death, dying and loss
  • Family caregiving for people with serious illness
  • Volunteers in end-of-life and palliative care
  • Non-professional agents and organizations in end-of-life and palliative care
  • Collaboration and coalitions between health care services and civil society or the general public
  • Community interventions to improve end-oflife or bereavement care
  • Public health policy to improve end-of-life or bereavement care in society

Target Groups

  • Academics and researchers
  • Patient organizations
  • Informal carer organizations
  • Volunteer organizations
  • Policy makers
  • Palliative care professionals
  • Palliative care organizations


Programme Day 1

Thursday 25 October




Welcome by prof. Augusto Caraceni, Chair of European Association for Palliative Care - Research Network
and prof. Luc Deliens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium 


Invited lecture: Epidemiology & palliative care
prof. Agnes van der  Heide, Erasmus MC, The Netherlands


Invited lecture: What can big data do for public health palliative care research?
prof. Joachim Cohen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium


Lecture based on best abstract selection:
Men and Family caregivers’ experiences of advanced prostate cancer in Ghana: A qualitative serial interview study
Yakubu Salifu, University of Nottingham, United Kingdom


Abstract session: Epidemiology and population health
Chairs: prof. Joachim Cohen and prof. Agnes van der Heide

  • 11u10: Trends in the timing and uptake of palliative home care support: a register-based study using full-population national databases from 2010-2015 Arno Maetens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
  • 11u30: Dying in long-term care facilities in Europe: the PACE epidemiological study of deceased residents in six countries.Elisabeth Honinx,  End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
  • 11u50: Treatment patterns and associated factors in patients with advanced epithelial ovarian cancer: a population based study between 2008 and 2016. dr. Heidi Fransen, Netherlands Comprehensive Cancer Organisation (IKNL), The Netherlands
  • 12u10: The quality of primary palliative care for the oldest-old in three European countries: A mortality follow-back studyKim de Nooijer, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
  • 12u30: Experience of bereavement and grief support: An Irish population studyAmanda Roberts, Irish Hospice Foundation, Ireland     


Lunch & poster viewing


Abstract session: New public health approaches and community development
Chairs: prof. Xavier Gomez Batiste Alentorn and prof. Gunn Grande

  • 14u00: Findings from a DöBra Feasibility Study: A Conversation-based Intervention for Clarifying Values and Preferences for End-of-Life in the Advance Care Planning-naïve Swedish Context - Malin HenrikssonKarolinska Institutet, Sweden
  • 14u20: Navigating power and responsibility in developing an intergenerational and arts-based program about death and loss as part of the Swedish DöBra
    Max Kleijberg, Karolinska Institutet, Sweden
  • 14u40: Exploring a conversation tool for reflection about the end of life in elder care Therese Johansson, Karolinska Institutet, Sweden
  • 15u00: Where lies the potential role of public health in shaping equity of access of palliative care services for homeless individuals?- Karyn Joss, University of Edinburgh, United Kingdom
  • 15u20: Making The People’s Charter on Dying, Death and Bereavement in Ireland – Rebecca Lloyd, Irish Hospice Foundation, Ireland




Invited lecture: Why public health should look at family carers of dying persons 
prof. Gunn Grande, Supportive and Palliative Care Research Group, University of Manchester, UK 


Panel discussion day 1: panel members (TBD)


Poster viewing


Conference dinner (walking dinner)


Programme Day 2

Friday 26 October



9u20 Opening by Maggie De Block, Minister of Social Affairs and Health, Belgium


Invited lecture: Natural history of palliative care: From the British hospices to the Compassionate communities
prof. Xavier Gomez Batiste Alentorn, Catalan Institute of Oncology, Spain


Lecture based on best abstract selection:
Criterion validation of a simple tool for early identification of palliative care patients (ID-PALL): preliminary results
Fabienne Teike Lüthi,. University of Lausanne, Switzerland   


Invited lecture: What's new about new public health research? What role does it play in the future of palliative care research?
dr. Libby Sallnow, University College London and St Christopher's Hospice, UK




Abstract session: Health services, health care and policy
Chairs: prof. Luc Deliens and dr. Libby Sallnow

  • 11u10: Four profiles of informal caregivers who provide care to patients at home at the end of life: A Q-methodological study into informal caregiver’ support needsDr. Roeline Pasman, Universiteit Amsterdam, The Netherlands
  • 11u30: Self-management of patients with advanced cancer: a systematic reviewKim de Nooijer, Erasmus University Medical Center, Rotterdam, The Netherlands  & End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
  • 11u50: Stakeholder engagement in the development of complex interventionsJoni Gilissen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
  • 12u10: Support for family carers in specialized palliative care: a cross-sectional survey study in 34 palliative care services at home and in the hospitalMaarten Vermorgen, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium
  • 12u30: Post-graduate palliative care education for all healthcare providers in Europe: Results from an EAPC surveyPiret Paal, Paracelsus Medical Private University (PMU), Austria


Paneldiscussion day 2: panel members (TBD)


Closing of congress followed by lunch, 
prof. Luc Deliens, End-of-Life Care Research Group Vrije Universiteit Brussel & Ghent University, Belgium


Contact & sponsoring
Geertje van Duijnhoven
+32 478 96 91 15

Arno Maetens
+32 2 477 49 59


Hotels near the congress venue:

Hotel Chambord
Stanhope Hotel by Thon Hotels
Leopold Hotel Brussels
Aparthotel Adagio Access Bruxelles Europe Aparthotel


Cultural events in Brussels 24-26 October 2018

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