Objective: To describe and evaluate the quality of palliative care and quality of dying among noncancer patients in different European countries
 
More specifically, the researcher will study different aspects of use and accessibility of palliative care , symptom prevalence, outcomes and clusters in different conditions, treatments received at the end of life, and quality of care and dying in terms of comfort, symptom distress, palliative problems etc. These domains have been identified as important domains to measure quality of palliative care. Non-cancer patients include patients with COPD, chronic heart failure or other life-threatening diseases. There is data from past and ongoing retrospective and prospective studies, using common measures and assessment e.g. data using the Palliative Outcome Scale, GP networks in Europe, death certificates studies, data from the interrRAI Long Term Care Facility and studies in long-term care settings.
 
If you want more information, please contact

• Katrien Moens (researcher)
• Richard Harding (lead)

 
Objective: To describe and evaluate the communication, end-of-life decision-making, advance care planning among noncancer patients in different European countries
 
More specifically, the researcher will study different aspects of communication, end-of-life decision-making, and advance care planning, domains that have been identified as important domains to measure quality of palliative care. Non-cancer patients include patients with COPD, chronic heart failure or other life-threatening diseases other than cancer. A number of retrospective and prospective data that have been or are being gathered across Europe are at the disposal of the researcher e.g. data from GP networks in Europe, the interrRAI Long Term Care Facility, the Liverpool Care Pathway, questionnaires from physicians concerning end-of-life decision-making.
 
If you want more information, please contact

• Natalie Evans (researcher)
• Bregje Onwuteaka-Philipsen (lead)